I’m a photo blogger, but I’m reblogging this for my MS friends. :)
Ed B added… Well done… and thank you!
Depending on who we are with… I wonder if we tend to exaggerate or understate our problems. MS is so misunderstood… I wonder if even our nearest and dearest can begin to understand the pain and frustration we go through every day whilst they display even their mildest headache with a pained expression on their face. ~ Trish
I had to reblog this (easy to think of and substitute ‘he’ for ‘she’ and ‘woman’ for ‘man’ in the quotation) because it’s one of life’s difficult truisms… easy to reflect on, hard to act on, but true nevertheless!
I have MS, I am a mess
The doctor tells me not to stress
My feet are numb, my eyes are blurred
I struggle to find my next word
The meds I take are priced quite high
To keep the faith I try and try
My family cries, “Do this! Do that!
You need to rub on Emu fat,
and try stuff we saw on TV!
You should get disability!”
They all have answers for my plight
but nothing makes my legs work right
I’ve tried it all and nonetheless
I have MS. I am a mess.
“…partial paralysis…” I really know what that is like… sometimes “partial” may as well be “complete” - although I am relieved at the small mercy! I haven’t been able to stand nor use my legs for five years! I used to be very athletic, always running from store to store with my then lover Ed trying to loosen my grip on his hand because he wanted to stop and take yet another photograph of something or other. Now he chooses to hold my hand much of the day and most of the night… and he says he’s got enough photographs already so why does he need to take me up on the suggestion he gets out for an hour or so with his camera. Actually, he does get out walking or cycling for an hour or so in the afternoon when I’m snoozing. ~ Trish
I sing this to myself when I’m feeling down… it’s a simple tune, but it brings me some happiness for the moment…
ive been robbed
robbed of my dreams
robbed of my hopes
robbed of my life
everything changed in that moment
that moment he spoke the word you have ms
i just try and hold everything together
as i’m robbed of my life
broken down into nothing
waiting for the cure
i try and build up…
My favourite part of my entire body is my hands.
Not because I’m odd, and have a thing for hands.
But because without my hands, I would be nothing.
I use my hands for everything, not just to hold a cup or open a door.
My hands have held crayons and markers.
I have drawn pictures like any…